Caring for someone with IBD

Information for parents

If your child has IBD, it can be a frightening and frustrating time. Some of the links below are great places to seek information from like-minded people and organisations that support kids and teens with IBD.

About IBD in children

Crohn’s & Colitis New Zealand has information about IBD in children and adolescents, plus information about school, sports and IBD.

Get connected

It can be heart-breaking watching your child suffer through IBD. Get inspired by kids with IBD at empoweredbykids.com. It’s a site where parents celebrate the strength of their kids through adversity, giving them confidence that better days are ahead.

Transitioning care

Adolescent transition is an important process for you as a parent/carer to go through as you encourage your child to look after their own health and become independent. Read more at Starship Children’s Health.

Information for your kids

Crohn’s & Colitis New Zealand has information for parents and children and for teens. There’s also a guide for teenagers living with IBD.

For teens, Just Like Me! Teens with IBD from the Crohn’s and Colitis Foundation USA has information about IBD for teens, ask an expert, tips and tidbits and how to connect with others. Please note, some medications may not be available in New Zealand, and there are differences in eligibility for medications between New Zealand and the USA.

myIBD is an app for young people to take control of their symptom reporting by regularly recording their symptoms. It’s available for download to Apple and Android devices. Please note, some medications may not be available in New Zealand, and there are differences in eligibility for medications between New Zealand and Canada.

Anxiety and depression are very common in people with IBD. The Lowdown has information and support for young New Zealanders about anxiety and depression.